With the CORONAvirus becoming pandemic; we are taking action, and work with our partners to provide guidance for our children and young people with rheumatic diseases and their parents.
WORLD YOUNG
RHEUMATIC DISEASES DAY
March 18th | #wordday
We have received the Paediatric Rheumatology European Society’s guidelines
on caring for children and young people with rheumatic diseases during the COVID-19 outbreak
PReS Guidelines March 15th, 2020
Stay tuned and follow our Social media pages for additional updates!
Raising awareness and knowledge to help first and foremost in early diagnoses of young rheumatic diseases
33
Countries
9
Presentations
1560
Tweets
JOIN OUR MAILING LIST OR SHARE YOUR
STORY TO CREATE AWARENESS
Submit your WORD Day activity to the WORD World Map
Let your community know
about your local WORD Day
Activity/Campaign
EARLY INTERVENTION
PROVIDES BETTER
OUTCOMES
PREVENT
COMPLICATIONS
FACILITATES
TREATMENT
EARLY TREATMENT
Enables children to reach full remissions and increases their chance of leading a normal life
DELAY IN TREATMENT
Increases the risk of permanent damage such us joint destruction or deformity
Often causes a need for more agressive treatment and impact general wellbeing
TELL YOUR STORY
INSTRUCTIONS AND
PRIVACY
When filming with your phone: hold it horizontal
By providing us with this film, you are authorising us to use it during the campaign WORDday2020.
Upload your file to WeTransfer and send the link to contribute@wordday.org
If you don’t want to make a video but still want to share your story then please email us at contribute@wordday.org
Use #WORDDAY2020 on social media
Make a short video in your own language. If you don’t want to show your face, you’re welcome to film something else while telling us your story. We will compile all material and use it during the WORD 2020 campaign.
GENERAL DETAILS
- Name or Nickname
- Country
- Age
- Diagnosis
- Time between first symptoms and diagnosis
EARLY INTERVENTION
OR DELAY
- Has early intervention made
a difference? - Would early intervention
have made a difference?
HOW DO YOU FEEL
- Name one good thing
about your journey or
current situation and one
thing that you would like
to see changed…
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