Status: active
Address: Greece
Date: 2023-03-18
Organized by: ReuMAZein-Panhellenic Federation of Associations of Patients, Parents, Guardians and Friends of children with rheumatic diseases
Contact Email: reumazein@gmail.com
2nd Online Congress for Children and Adolescents with Pediatric Rheumatic Diseases
Title: The management of Rheumatic Diseases in children and adolescents: The family contribution
09:00 Welcome address Caterina Koutsogianni (5 min)
09:10 – 10:20 Section A : Diagnosis
Coordinator Caterina Koutsogianni
• Presentation of the RHEUMAZEIN survey: “The trajectory to diagnosis in patients with Juvenile Idiopathic Arthritis” -Elina Repa (10 min)
• Short Greeting – Eve Smith (10 min)
• The diagnosis announcement to the child and the family under the specialist’s lens -Vaios Dafoulis (15 min)
• The diagnosis announcement announcement of diagnosis to the child and the family under the parent’s lens – E. Dimitriou (10 min)
• Thesis presentation: The family life experience of Juvenile Idiopathic Arthritis -F. Galani – Maria Delliou (15 min), Comments Supervisor: Ass. Prof Ch. Papachristou
Q&A, comments and discussion (10 min)
10:25 – 11:10 Section B: Transition: Challenges during the growth and development trajectory in children and adolescents
Coordinator: Kiki Spanidou
• A child-an adolescent – a young adult with a rheumatic disease-Vaya Giaferi (15 min)
• Transition Outpatient Clinic: Good practice policies-Despoina Dimopoulou (15 min)
11:15 – 12:10 Section C : Clinical Remission
Coordinator: Elina Repa
• How to define clinical Remission in Pediatric Rheumatic Diseases on /off treatment-Eirini Pontikaki (15 min)
• Prognostic factors in respect to adulthood-Artemis Koutsonikoli (15 min)
• Management of clinical remission: the aftermath-Jenny Pratsidou-Gertsi (15 min)
Q&A, comments and discussion (10 min)
12:15 – 13:50 Section D : The everyday life of an adolescent with an autoimmune disease
Coordinator: Fotini Asimakopoulou
• Potential co morbidities (development of other autoimmune diseases) IBD, Celiac, Thyroid diseases-Μaria Fotoulaki (15 min)-Αthanasios Christoforides (15 min)
• Education and Vocational counseling-Theodoros Aivaliotis (15 min)
• Sexual life and reproduction: raising concerns-Chrysavgi Kotsifa (15 min)
• The importance of physical exercise-Maria Stavrakidou & Kiki Spanidou (15 min)
Closing session: A contribution to the child and family education on Juvenile Idiopathic Arthritis.
Presentation of an educational booklet: Prof Florence Kanakoudi-Tsakalidou (10 min)
Q&A, comments and discussion (10 min)
13.55-14.15 Closing remarks
Jenny Pratsidou-Gertsi – Fotini Asimakopoulou (15-20 min)
SATURDAY 18, 2023, 9.00 am Eastern European Time (EET), UTC +2
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