Day in the life of living with a rheumatic disease
An image speaks a 1000 words. Sharing your story is a powerful way of giving children with rheumatic diseases a voice. You can choose to remain anonymous by capturing images without showing your face. You can show medical aspects, share what inspires you or your everyday life: whatever you feel comfortable with.
Make a short video in your own language. If you don’t want to show your face, you’re welcome to film something else while telling us your story. We will compile all material and use it during the WORD 2021 campaign.
Name or Nickname
Time between first symptoms and diagnosis
EARLY INTERVENTION OR DELAY
Has early intervention made
Would early intervention
have made a difference?
HOW DO YOU FEEL
Name one good thing
about your journey or
current situation and one
thing that you would like
to see changed…
INSTRUCTIONS AND PRIVACY
When filming with your phone: hold it horizontal
By providing us with this film, you are authorising us to use it during the campaign WORDday2021.
Unable to attend an event in your region? There are many ways you can contribute online:
Have a look at our toolkit for resources to share during the week of WORD Day 2021.
Remember to use the hashtag: #wordday2021.
Every like, share and retweet goes a long way.
Join the WORD Day webinars taking place (more information coming soon)
Use the WORD Day profile frame to spread the word
Submit a video for the ‘Day in the life of living with a rheumatic disease’ awareness campaign. All you need to do is voiceover a video of you going about your day and including things like your medications or doing physio, doing some exercise, what you do when you are having a bad day or in pain. For example maybe how you struggle to do school work or anything else that you could think of that would show people how hard it is to live with a rheumatic disease and how it impacts your day to day life. Submissions can be sent to Niamh Costello: firstname.lastname@example.org
The travelling message board activation
See what YOUR RHEUM has planned for WORD Day and take part!
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