Share your story

Day in the life of living with a rheumatic disease

An image speaks a 1000 words. Sharing your story is a powerful way of giving children with rheumatic diseases a voice. You can choose to remain anonymous by capturing images without showing your face. You can show medical aspects, share what inspires you or your everyday life: whatever you feel comfortable with.

Make a short video in your own language. If you don’t want to show your face, you’re welcome to film something else while telling us your story. We will compile all material and use it during the WORD 2021 campaign.

GENERAL DETAILS

  • Name or Nickname
  • Country
  • Age
  • Diagnosis
  • Time between first symptoms and diagnosis

EARLY INTERVENTION
OR DELAY

  • Has early intervention made
    a difference?
  • Would early intervention
    have made a difference?

HOW DO YOU FEEL

  • Name one good thing
    about your journey or
    current situation and one
    thing that you would like
    to see changed…

INSTRUCTIONS AND PRIVACY

FORMAT-MP4

When filming with your phone: hold it horizontal

PRIVACY

By providing us with this film, you are authorising us to use it during the campaign WORDday2021.

WE TRANSFER

Upload your file to WeTransfer and send the link to contribute@wordday.org

Niamh Costello will also be sharing submissions through the WORD Day TikTok channel: niamhcostello120@gmail.com

OTHERS WAYS TO CONTRIBUTE

If you don’t want to make a video but still want to share your story then please email us at contribute@wordday.org

Use #WORDDAY2021 on social media

Activities around the world

Check out the Activities around the world to find events in your area

Are there no activities in your region yet, or do you want to setup another one?

  • Check out the WORD Day 2019 impact report for inspiration
  • Use the images and information from our Promotional Toolkit to create your own posters, folders and other material
  • Optional tip: use canva.com to design posters, folders and digital material, it’s an intuitive tool that helps you create beautiful designs
  • Enter the details regarding your plans on our world map
  • Optional: create a Facebook event to invite your audience
  • Have fun at your event & don’t forget to take photos and/or videos (make sure to get consent to share)
  • Let us know how it went & share your content and footage with hashtag #WORDday2021

Join our community of global change makers

  • Medical professionals
  • Patient organisations
  • Companies
  • Locations
  • Sport persons
  • Celebrities

We are looking for WORDday ambassadors: together we can and will make a difference

Provide us with your information and a picture, either via mail or social media, and we will add you to our ambassador page

Take part on social media

Unable to attend an event in your region? There are many ways you can contribute online:

  • Have a look at our toolkit for resources to share during the week of WORD Day 2021.
  • Remember to use the hashtag: #wordday2021.
  • Every like, share and retweet goes a long way.
  • Join the WORD Day webinars taking place (more information coming soon)
  • Use the WORD Day profile frame to spread the word
  • Submit a video for the ‘Day in the life of living with a rheumatic disease’ awareness campaign. All you need to do is voiceover a video of you going about your day and including things like your medications or doing physio, doing some exercise, what you do when you are having a bad day or in pain. For example maybe how you struggle to do school work or anything else that you could think of that would show people how hard it is to live with a rheumatic disease and how it impacts your day to day life. Submissions can be sent to Niamh Costello: niamhcostello120@gmail.com

The travelling message board activation

See what YOUR RHEUM has planned for WORD Day and take part!